Friday was a very bad day. I was not mentally sharp, couldn’t see much and couldn’t hear much. I am sure I irritated a number of people by texting at midnight, not knowing what time it was. I am sorry if you are one of those, please forgive me.
I have not been able to look at anything until now. I am not texting right now, well I am voice enabled texting, but I am not able to read them. I used to have my computer linked with the phone. Since I got a new phone in May, none of my conversations register on the mac. Today, I was able to send a text from my mac, and see and the person I was texting from my computer said that they received it, and I could read that on my mac. So I think I am in business. If you don’t hear back from me, I promise I am not ignoring you. Please be patient a little while longer.
Last night I had another experience with the feeling of pins and needles head to toe. The worst are the feeling of needles poking in my left eye where the tear duct is. Makes me jump. This has been going on for years as well as on the top of my head. I had no idea for 25 years that it was an MS thing. I understand it is like diabetic neuropathy. They started me on meds that address that and it has worked successfully. I think that this MS flare has aggravated it right now. I want no more medication right now, so I will wait it out. This week, it is only happening at night when I try to sleep. Last year it was all day long and night too, and the doc put me on the meds. For a couple of nights this week, it started the minute I went to bed. The other day I tried ovaltine as a last minute attempt. It worked. That was super early in the morning. Last night, I made the luscious hot liquid immediately and I was asleep by 11 or 12! So that is the plan right now. I put my headphones in and slept, waking only briefly at 4 a.m., when the song was playing, “You’re Bigger Than I Thought You were.” I just made a wide smile and fell back asleep. So cool. https://youtu.be/o9YnFjsc2XY
These things (and others) have gone on since I was a child, so it is possible that I have had MS for my life. They never heard of it in the ‘50’s. They thought I had a big imagination. You start to learn how to ignore symptoms, because the medical community would act like you are insane. But like Sheldon Cooper, my husband had me tested, and I am not crazy! HAHAHAHA! Okay, now I am crazy.
On my blog there is a story I wrote about going to the neuropsychologist, and her very youngster-like opinion was: "you are just what we expect from someone of your age and education."
I proceeded to tell her that I had created 3 federally non-profit organizations in the last 20 years (2 in the last 5 years), and was their treasurer for the whole time. She started scribbling madly, and I thought Al was going to jump over the desk and slug her but it is not his style.
As we left, we laughed and told each other, "she’s just what we expect from her age and education."
Last night, instead of not hearing, my hearing began to be overly sensitive. I had been having the volume on the TV on 85, now it is on 15. Poor Al, he just sighs.
I was so blessed to go to church today! Al took me and I loved it. The noise was painful for me though. I was unable to look up or read, somehow it hurt my head. I still loved it. I covered my eyes and ears sometimes, but I STILL enjoyed it. I was able to see a few more people than last week. So wonderful. Isolation gets old. We left immediately and I lay down until 3. Head doesn’t hurt now, I can see the big print on my computer, and I still have low vision. I can watch things on TV with the sound off. Can’t read the captions, so I turn them off, they give me a headache. To me anything is wonderful! Kitty videos on the TV with no sound are so much fun!!!
It is best for me not to be alone right now. Sweet friends (one at a time for about an hour) come to stay with me. I am more than blessed! I get tired, but it is so wonderful not to be alone and to see their beautiful faces in person! I am very spoiled!
I am still canceling things. I have not seen Gloria since last Sunday, and I will be isolated longer I am sure. I send the staff emails so they know what is going on for me. She is very lonely without me. It hurts me to know I can’t be there, but I know she is so delightfully cared for at Kensington Place. I do not know how much longer she will live. I’m hoping it is years, but we just don’t know. I just want to make sure I can say goodbye. But if I can’t, it’s part of the plan and I will grieve but understand.
Right now I can’t think of anything else. Besides, I am tired and you MUST be tired of reading!
Blessings and love
barb
I have not been able to look at anything until now. I am not texting right now, well I am voice enabled texting, but I am not able to read them. I used to have my computer linked with the phone. Since I got a new phone in May, none of my conversations register on the mac. Today, I was able to send a text from my mac, and see and the person I was texting from my computer said that they received it, and I could read that on my mac. So I think I am in business. If you don’t hear back from me, I promise I am not ignoring you. Please be patient a little while longer.
Last night I had another experience with the feeling of pins and needles head to toe. The worst are the feeling of needles poking in my left eye where the tear duct is. Makes me jump. This has been going on for years as well as on the top of my head. I had no idea for 25 years that it was an MS thing. I understand it is like diabetic neuropathy. They started me on meds that address that and it has worked successfully. I think that this MS flare has aggravated it right now. I want no more medication right now, so I will wait it out. This week, it is only happening at night when I try to sleep. Last year it was all day long and night too, and the doc put me on the meds. For a couple of nights this week, it started the minute I went to bed. The other day I tried ovaltine as a last minute attempt. It worked. That was super early in the morning. Last night, I made the luscious hot liquid immediately and I was asleep by 11 or 12! So that is the plan right now. I put my headphones in and slept, waking only briefly at 4 a.m., when the song was playing, “You’re Bigger Than I Thought You were.” I just made a wide smile and fell back asleep. So cool. https://youtu.be/o9YnFjsc2XY
These things (and others) have gone on since I was a child, so it is possible that I have had MS for my life. They never heard of it in the ‘50’s. They thought I had a big imagination. You start to learn how to ignore symptoms, because the medical community would act like you are insane. But like Sheldon Cooper, my husband had me tested, and I am not crazy! HAHAHAHA! Okay, now I am crazy.
On my blog there is a story I wrote about going to the neuropsychologist, and her very youngster-like opinion was: "you are just what we expect from someone of your age and education."
I proceeded to tell her that I had created 3 federally non-profit organizations in the last 20 years (2 in the last 5 years), and was their treasurer for the whole time. She started scribbling madly, and I thought Al was going to jump over the desk and slug her but it is not his style.
As we left, we laughed and told each other, "she’s just what we expect from her age and education."
Last night, instead of not hearing, my hearing began to be overly sensitive. I had been having the volume on the TV on 85, now it is on 15. Poor Al, he just sighs.
I was so blessed to go to church today! Al took me and I loved it. The noise was painful for me though. I was unable to look up or read, somehow it hurt my head. I still loved it. I covered my eyes and ears sometimes, but I STILL enjoyed it. I was able to see a few more people than last week. So wonderful. Isolation gets old. We left immediately and I lay down until 3. Head doesn’t hurt now, I can see the big print on my computer, and I still have low vision. I can watch things on TV with the sound off. Can’t read the captions, so I turn them off, they give me a headache. To me anything is wonderful! Kitty videos on the TV with no sound are so much fun!!!
It is best for me not to be alone right now. Sweet friends (one at a time for about an hour) come to stay with me. I am more than blessed! I get tired, but it is so wonderful not to be alone and to see their beautiful faces in person! I am very spoiled!
I am still canceling things. I have not seen Gloria since last Sunday, and I will be isolated longer I am sure. I send the staff emails so they know what is going on for me. She is very lonely without me. It hurts me to know I can’t be there, but I know she is so delightfully cared for at Kensington Place. I do not know how much longer she will live. I’m hoping it is years, but we just don’t know. I just want to make sure I can say goodbye. But if I can’t, it’s part of the plan and I will grieve but understand.
Right now I can’t think of anything else. Besides, I am tired and you MUST be tired of reading!
Blessings and love
barb